Honestly, I should have posted this a few years ago, but time has a funny way of getting away from you.
At the end of September 2021, my dad had to go to the hospital, his blood sugar was around 850. He had not been taking his diabetes medication, we found out later he was suffering from an early onset of dementia. As a family we decided we were going to find a care facility that would help him with his medications, but also had a social aspect to get him out of bed, meeting new people. A week later though, those plans changed dramatically. Dad had to go to the hospital again because he was having trouble breathing. He had to have his lungs drained, as they were filling up with fluids. That’s when we found out he had cancer, again.
The decision was made that I would be the one to care for dad, as it was easier for me to take time from work, and he moved into our spare bedroom. At first, we were not sure where the cancer had started. He had cancer in his lungs, liver, pancreas, and spine. We were pretty sure it was his pancreas, as he was a 20-year pancreatic cancer survivor, but there was lots of testing to be done. I started making and taking him to all of his appointments, I was his driver now.
The first thing they did was place a drain in his lung so he did not have to go to the hospital and had a thoracentesis done each time his lung filled with fluid. At first the home nurses came to the house to drain his lung for him. After about a week or so of them coming every other day, I was taught how to drain his lung, so they didn’t need to come as often. So that is what I did, I learned to drain his lung. I became so good at doing it, he would only let me do it, even when the nurses came to check on him. During one of his visits to the emergency room, I had to train some of the ER nurses on how to operate the specific equipment he was using since they were unfamiliar with it.
All of this was happening during the second year of Covid. This was a rough time, having to decide who could come visit him, if masks needed to be worn, can he go out on small day trips (he was on oxygen by this time), so many decisions. I was stressed and worn out, living on coffee and stress. I am grateful for my husband; he was my saving grace. He would stay up late with dad so I could sleep, and boy did I need sleep.
Dad, I am honored to have been able to care for you during your final months.